9/11 Health - Health & Research Studies

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By Thomas Farley, MD, MPH, NYC Health Commissioner
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9/11 Health - Health & Research Studies

Understanding the Various World Trade Center Monitoring Programs

In the aftermath of the terrorist attack on the World Trade Center (WTC) several different institutions established monitoring programs to track the health effects of the disaster on people who were the most seriously affected. Eligibility for these monitoring programs is based on a number of factors including the role people played in the disaster response and their location on September 11, 2001, and afterward. Many people in these programs now live in other areas of the country.

A significant number of people enrolled in more than one monitoring program which has caused confusion. The snapshots below are intended to help people remember in which program they enrolled. More comprehensive information about each of the programs can be found by following the links provided. Each of the programs listed below is engaged in multiple specific research studies to better understand the health implications of 9/11.

The Fire Department of New York: World Trade Center Medical Monitoring and Treatment Program
15,160 people being monitored as of June 2009; enrollment remains open
Who’s Eligible:	All active FDNY and EMS, and all retired members who participated one day or more in rescue and recovery efforts between 9/11/01 and 7/01/02.
Contact:	718-999-1858

FDNY Treatment Program Snapshot

Among 4,794 patients treated for 9/11-related health problems between July 2008 and June 2009:

77% had lower respiratory symptoms, such as a cough, shortness of breath, wheezing or chest tightness
46% had gastroesophageal reflux disease (GERD) or acid reflux symptoms, such as heartburn
32% had upper respiratory symptoms, such as sinus or nasal congestion
10% had both physical and mental health problems

New York/New Jersey Consortium: World Trade Center Medical Monitoring and Treatment Program at Mount Sinai School of Medicine, the State University of New York at Stony Brook, New York University/Bellevue Hospital, Queens College and the University of Medicine and Dentistry of New Jersey
27,250 people being monitored as of June 2009; enrollment remains open
Who’s Eligible:	Workers and volunteers who responded to the WTC disaster
Contact:	888-702-0630; http://www.wtcexams.org/

NY/NJ Consortium Treatment Program Snapshot

Among 6,690 patients treated for 9/11-related health problems between July 2008 and June 2009:

71% had upper respiratory symptoms, such as sinus or nasal congestion
52% had gastroesophageal reflux disease (GERD) or acid reflux symptoms, such as heartburn
46% had lower respiratory symptoms, such as a cough, shortness of breath, wheezing or chest tightness
25% had both physical and mental health problems
19% did not have health insurance at one time during this period
10% received services in a language other than English

World Trade Center Health Registry
71,437 people enrolled; enrollment ended November 2004
Who’s Enrolled:	Building occupants and passers by south of Chambers Street on 9/11/01 Building residents living south of Canal Street on 9/11/01 Children and staff of schools south of Canal Street on 9/11/01 Rescue, recovery, clean up workers and volunteers at the WTC Site, WTC Recovery Operations site on Staten Island, or the barges during the period 9/11/01 to 6/30/02.
Contact:	212-442-1585 or 866-692-9827; wtchr@health.nyc.gov

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